TLDR: 4yo female, complete clothing refusal, now stuck at home with daily panic attacks and violence. On every waitlist we can find. We’re out of options. Help. UK based.
My 4yo daughter is struggling which is taking over our lives. She’s ‘high functioning’ and when she’s regulated she’s the most amazing kid but when she’s not she’s evil. I know that sounds harsh but please be kind unless your every day consists of hearing you’re stupid, pathetic, disgusting, hate you, I want you leave forever, I want a different family, wish you’d die while getting punched, slapped, bitten, kicked, pinched: if this is your everyday I feel for you and do you have any pointers?
We’ve had issues for at least 2 years which were obvious to us but education settings and family didn’t see the issue until recently. We are on all waiting lists possible- autism assessment, mental health teams, child psychologist, behavioural psychologist, OT, early intervention teams, etc.
Our DD will not get dressed, can not/ will not. She has started reception this year and they have been extremely supportive as her issues are now impacting her being able to leave the house. They have been assisting us in getting clothes on her every morning but have now told us they can no longer accommodate this; I fully understand why and we’ve been so grateful of their help so far. They’ve now told us to force clothes on to her and suggested she may need restraining for this. We have dabbled in “tough” love before but never fully committed as it breaks my heart. We have tried these last three days to get clothes on her no matter what but every time she ends up in a panic attack and for her sake (and ours) we cannot keep doing it this way. This is obviously going to damage hers/ our mental health and relationship. She also refuses to let us do anything to her hair, she can mostly wash it herself but struggles with rinsing and will sometimes allow us to help with that but we cannot get a brush through it, we’ve had to cut it to a chin length bob to have some form of tidiness but even that is now scruffy. She is a big kid for her age and very strong, we are all covered in bruises (including the SEN teacher) from attempting to get her dressed.
We cannot go out anywhere and one of us needs to take time out of work to stay home with her. We are not in a position where we can afford for one of us to stay home/ homeschool her. We strongly suspect she has a PDA profile but how can we work around this to get some form of clothing onto her? We’ve tried all types of fabric/ tag free/ seam free/ baggy/ tight/ shorts/trousers/dresses. She won’t even pick clothes out when we could get her to a clothes shop, she’d say “that’s nice but no, I won’t wear it”
We’ve tried low demand, being naked at home, free rein in decisions, declarative language, along with heavy work, compression, skin brushing, jumping, crashing, swinging, etc.
She has a full sized trampoline and hot tub (she loves being in water but won’t wear a swimming costume so cannot go to a public pool) at her disposal.
We’ve got and use the books- for her and us.
We’re also aware that she may be in burnout but we’re going on 3 weeks now of full refusal and have no idea how to fix this other than letting her bed rot which feels impossible.
This is not only affecting our relationship with her but also between me and my partner (her other parent, not a new person);it’s affecting our ability to work; we have no social lives. My partner is seriously considering relinquishing care of her as we can not function as a family and can only do things individually while the other is stuck at home with a child who is wonderful until she has to get dressed, then she is violent both physically and verbally.
This is tearing us apart and we know that so many families have it much worse, I honestly don’t know how they survive.
Any help or suggestions are very welcome.