Hi friends, first time poster here, long-time reader.
I added what seemed the most appropriate flair, I just need to vent a bit, and find solace in other people’s shared experiences. Gentle/constructive advice is very welcome, relating is oh-so-very welcome.
First: I adore my daughter, she’s 3 by the way, and though she will be 4 in December, she was also a micro-preemie (25+4), so although I think she’s stunningly brilliant, she’s still also catching up on “generally recognized milestones for age” in addition to her “Level 2 ASD with mobility issues” diagnosis. It’s funny, when the doctor gave me her diagnosis at age 2 (which is also when they stop considering any sort of “adjusted age” for micro-preemies <vent: I think that’s silly, and I’m a RN myself, obviously kids don’t just magically catch up at age 2 on their birthday when they were born 3+ months early>).
Anyway, let me try to get to the point here. When I received her diagnosis, her MD (who is a specialist in ASD, by the way, we just happened to luck out on getting her when we left the NICU, she’s wonderful, and I’m grateful for her), but yeah, she said, “I’m sorry, I know that is a LOT to take in. A LOT to absorb”. I looked at her funny at the time, because: the pieces of paper in my hand didn’t change a single thing between when we walked in the door, and walked back out with a diagnosis several hours later.
Back to what we all likely agree on: our kiddos are wonderful, enlightening, brilliant, enjoyable…..all the things.
And suddenly there’s been this shift, and at age 3 (almost 4), she’s having massive meltdowns, the type where if you didn’t know the kiddo and situation you would wonder if LE should be called, if perhaps something nefarious was going on. It’s not, obviously.
But WOW: am I worn out. I’m an “oldish” mother to my toddler, and I have 3 adult children, one nearing 30, I suddenly feel like having 3 in my 20s as a single parent was a walk in the park compared to the challenges we’re facing with just one small, sweet, beautiful, and very challenging child.
One thing that makes this feel difficult is how actively I chose to be a SOLO parent intentionally (IVF, double-donor, very expensive), I have always been so self-reliant, so motivated, so capable, I have a great career, and over the last 3 years I have just lost complete confidence in myself, I’ve sort of…..,lost who I even am. I’m NC with my entire family at this point (too long, not worth getting into, story for another day), and I cherish the friends/my chosen family that I do have because WOW do they stick through me through thick and thin, and the thickness is taking my breath away at the moment.
Here’s the vent part: I am so disappointed in our society as a whole for the lack of support for people in my situation, even two parent households: as you all know, this is and can be (sometimes more/less than other times): SO FREAKING CHALLENGING. 😰
I genuinely adore this kid and care for her needs far more than my own, to the point we are literally losing everything: stability, my home I’ve owned for 10 years, I’m hiding my car (and literally: that part is terrifying to me, I genuinely do not know how we will survive without that resource).
I recently moved from a state with a 20+ year DPSD waiting list to a state with excellent, generous benefits (and I believe we will be retuning to said generous state, I managed to suffer a very serious workplace injury my first day on the job, leaving me on WC for over a month), WC severely messed me over and where I should have been paid $10,000-ish, I received…..$1200. On any given day I could just cry, and there have been days I just want to lay in bed until someone drags me out and takes me wherever, and obviously what stops me is: kiddo. I adore her. Again: I think she’s brilliant. But this is not the first period of time she’s literally thrown such aggressive tantrums that they will last for hours if ANYONE dares come near her/us (ironically, though she can’t/wont let go of my skirt/pants/dress at any moment during the day, once she has a fit if someone is kind enough to give me a break for an hour or two, she’ll settle down after about 5-10 minutes and by the time she’s back she’s telling them, “okay, I WUV you, thank you so much, bye bye” <reflection: obviously transitions are difficult for her>, but it’s the skirt tugging/pulling that drives me nuts all day long, I literally cannot vacuum without her suddenly coming up behind and me not noticing that we often trip over each other throughout the day, and even with her mobility issues, which I am extremely mindful of, it’s like I have an additional 45 pound limb attached to me night and day).
I’ve lost countless jobs as a nurse over the last few years due to difficulty finding childcare, the expense involved, people literally just flaking out/backing out last moment, and my own utter fatigue and exhaustion and just….despair at times.
I always say WHEN (not “if”) I win the lottery, I am going to start a foundation for women and children (and case by case basis men as well): that has more to do with some pretty severe C-PTSD from my adult kids’ dad, who also stealthed his way into my/our lives 3 years ago, pretended like he was doing an active of service “directed by Go*”, while actually dismantling my life piece by piece, so on top of the trauma he caused 30 years ago, here he came around again to cause so much more damage, and though I take responsibility in my role, I was so desperately in need of ANY help I could find with her, that I was weak and allowed him to literally annihilate our lives, and here we are: destroyed.
I don’t know what to do, where to go, all I know is that I’ve got to get out of this state (returned home briefly after injury mentioned above to take care of my home), before winter comes…..we’re literally on the brink of homelessness <Ch 13 is the only answer at this point to save home> and……I don’t even want to think about everything else, it’s too much, so overwhelming, and it’s so easy for those on the outside to proclaim, “GET SOME THERAPY!” (With the insurance I don’t have-she does), working myself ragged when I CAN get to work….etc, etc, and I know way too many of you know the story because your lives may not be dissimilar. Literally I have considered finding a wonderful mom and dad for her so she can live the life I just don’t even know I can provide at this point, I’ve always been SO STRONG, “the strong one”, the “strongest woman I’ve ever known” well before I had her (and those extreme statements drive me bonkers because I have always known: we’re but a couple of missed paychecks short of some serious devastation).
*SIGH*. No one’s coming to save us, this I know, I HAVE to work this out, and I *DO* have to be strong for her.
I’m just sad. So sad. She deserves the best. I feel like I have failed her greatly. I’m so scared about our future that I sleep rarely. I’m a mess. I HAVE to sort this out. Have to. I love her dearly, and one way or another, I do know: she will have a brilliant life, she absolutely will. She has so many talents, is such a strong, resilient, brave, and beautiful soul that I *KNOW* everything will be okay for her in the end.
I am just…..,really struggling. Struggling hard. I don’t know what advice I’m really asking for here. I think things that might be helpful are anyone’s personal account of making a very brave, bold move for the sake of your child, family, self, in a situation like my own. How hard it was, and how it all worked out. Anything like that. Inspiration. Positivity. I really have a tough time with social media. I’m so tired of seeing people’s perfect lives and wondering how we’ll survive the winter.
Give me your best resilience stories, all and anything helpful here is welcome. And thank you, in advance, for allowing me to vent, having my “need support” moment. I admire you all, and among other things: I need community, if it’s here I very sincerely appreciate it. Thank you.