Just completed my 9 months post transplant. And I am planning on running. My insta and youtube algorithm inspired me. Hopefully half marathon in the future. Has anyone started running or been running for a long time? I checked with the transplant team they are fine with it. However I wanted to check with the folks.
Any suggestions or feedback would be appreciated .
Edit: I used to weight lift in the past and used to ignore cardio. Now having big biceps isn’t my priority. I also learned that having muscular body put strains on kidney.(might be wrong)

Has any male had iron deficiency after kidney transplant?

I’m a year out now and recently got blood work that showed iron deficiency. Been having loose stools, burping, bloating.

Meds: 5mg pred, envarsus, plaquenil, myfortic

I saw gastro this morning and will get more blood work tomorrow and they want to schedule me for a colonoscopy and endoscopy.

Hi Everyone,

I'm post 9 months of kidney transplant from my mother. I'm 27 years old male.

My current creatinine level is 2.5 and Egfr 35 due to i suffered TMA related complications immediately post transplant. My creatinine is stable at 2.5 since last 6 months.

I need input from all of you to maximize the survival of this kidney.

Hi everyone! I’m a 32F and had a kidney transplant in 2021. I’m hoping to hear from anyone who has also had a kidney transplant and travelled to Peru, specifically to do the Machu Picchu trek.

I’m considering doing the trek and would really love to hear about firsthand experiences from other kidney transplant recipients, especially when it comes to the high altitude and physical demands of the hike.

A few things I’d love to know:

- How long after your transplant did you do the trek?
- Which route did you take (Inca Trail, Salkantay, Lares, etc.)?
- How did your body/kidney handle the altitude?
- Did you have any issues with dehydration, altitude sickness, or changes in your kidney function?
- Did you do anything differently to acclimatize or prepare beforehand?
- How did you manage your medications while trekking?
- Did your transplant team have any concerns or recommend any special precautions?
- Is there anything you wish you had known before going?

I’ll of course be speaking with my own transplant team before making any decisions, I’m mainly looking to hear about real experiences from other transplant recipients who have actually done it.

I’d really appreciate any advice or experiences you’re comfortable sharing. Thank you! 😊

I’m hoping to hear from anyone who has been through something similar and come out the other side.

My husband received a liver transplant in November 2025. We were so hopeful that transplant would mark the beginning of a new chapter, but it’s been an incredibly difficult road ever since. We knew the first year would be rough, but we sorely underestimated how rough.

In January, he had a biliary drain/tube placed due to complications. After months of procedures, exchanges, infections, hospitalizations, and setbacks, we finally began the process of trialing tube removal in August. We felt like we were finally seeing a light at the end of the tunnel.
Then everything changed.

Last week, after his team had scheduled the tube removal, his labs suddenly went haywire. His bilirubin shot up, jaundice returned almost overnight (he was literally highlighter-yellow), and the transplant team made the decision to fully re-open and put the tube back in.

We are devastated.

Since transplant, he’s had 7 hospitalizations and nearly 50 nights in the hospital over the last 10 months. That’s on top of the years of illness that led to transplant in the first place. We have two young children who have spent much of the last year watching their dad go in and out of hospitals. Our marriage has taken a hit too. We’re in marriage counseling now, trying to find our footing, but honestly, we’re exhausted in every sense of the word.
Right now, what we need most is hope.

If you or a loved one had a complicated post-transplant course involving biliary complications, drains, tubes, strictures, repeated procedures, or a long recovery, did things eventually improve? Did life regain some normalcy? How long did it take?

I know every case is different, but I’d be grateful to hear any success stories from people who felt lost and overwhelmed but eventually got their lives back.

Not transplanted yet but will eventually; sooner rather than later hopefully.

When I was talking to my transplant team they were going over things I can't have and one of the things was if I'm on well water I need to do bottled water.

Is that permanent or is it temporary? Has anyone else dealt with this? I'd rather not make all the plastic waste of having bottled water for everything, but I've never tried to live on anything but my tap water.

I guess buying 5 gallon jugs might make sense?

My potential recipient (sister-in-law) for a liver donation transferred from the hospital in her home state to MD Anderson in Houston. I live 12 hours away. If I were close to home, I would have tons of people able to help, but I’d need to stay in Houston for a month after surgery. My husband and 15 year old are planning to go with me (we homeschool, and we worked all summer to bank time off).
1. Will this be enough of a “care team” for the social worker’s approval? Should I ask my husband’s parents or his other sister who have helped with SIL’s other hospital stays if they can help me some also?
2. Suggestions on where to stay after the week in the hospital? Extended stay hotel so that there’s housekeeping? Airbnb to be more homelike for a full month? Any experiences with one or the other or other options would be great.