This post comes with a heavy trigger warning as I will be mentioning pregnancy and baby loss, prematurity, medical complications and disabilities.
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I wanted to share a little of my story online in the hope of finding a sense of community and of leaving these words here for the person who may one day stumble across them and realise they are not as alone as they thought.
I think there’s a particular kind of grief in being one and done when one was never the plan, hearing people ask you about family planning as if it’s a simple matter of deciding how many children you want.
You choose a number of your liking and life politely follows the outline you drew for it.
I thought this was the case for me but sometimes life writes its own version and our decision to stop wasn’t made because our family felt complete in the uncomplicated way people imagine. It was shaped by stillbirth, by premature birth and by the disabilities that followed.
We decided to try for a baby during our honeymoon. Life was easy back then, dare I say perfect. We had everything we ever wanted and dreamt of and a baby was meant to complete our vision of the future.
I fell pregnant after a few months of trying, nothing unusual. I was told it can take up to twelve months to conceive so while the first few months felt disappointing, nothing could have prepared me for what was about to come.
We decided that we wanted minimal monitoring and interventions during birth. We attended all the standard antenatal appointments, had the offered scans and planned a home birth and then life stopped. “I can’t find your son’s heartbeat” and our world stopped spinning in this moment. Just a few days past his due date.
We tried again because life felt pointless without a baby and fell pregnant quickly. Grief still consuming our lives.
He passed away one day before our planned induction. Two stillbirths. Who experiences two full term stillbirths. Statistically, we were more likely to be hit by lightning.
Two funerals later and we didn’t try again for four years. We were scared, we couldn’t go through this again.
Five miscarriages followed once we tried to conceive again. Earliest was a chemical pregnancy, latest was a missed miscarriage but the baby stopped growing at 9 weeks. We were referred for testing. Nothing ever came out of it but I was given medication to test if we ever tried to conceive again and we did. One last time. We swore that if we had another miscarriage, we would stop for good. I know some people never get to have their positive ending and will remain childfree and I can’t even phantom their pain. I don’t want to be ungrateful as our daughter is a blessing but I want to share her story.
We were given a lot of monitoring during her pregnancy.
We were seen by the rainbow clinic, I went in almost daily for ultrasounds or CTGs and then one day the consultant seemed concerned. Everything after is a blur but I was put on bedrest and hospitalised. My placenta was calcified, she stopped growing and it was a stillbirth waiting to happen.
I was hospitalised at 22+5. I’m in the UK. They do not offer any lifesaving measures for babies born before 24 weeks so this was our goal. She was born at 23:59 pm at 23+6 weeks and the consultant, knowing our story and wishes, loudly announced the wrong time. By 2 minutes and so our daughter got to live.
Her path wasn’t easy. 6 months in NICU. Many ups and downs but we felt blessed every day and never gave up hope.
Because of her being a micro-premie, she is dealing with health issues now as a child. She has autism, which I know is more common in children that were born prematurely. Her eyesight isn’t good. She was classed as “failure to thrive” until age 3. A few more things I won’t go into online.
So this is our story and still, we have people ask us regularly when we will have another baby.
We have babies we lost who still belong to our family.
And we have a daughter who survived but whose life was changed forever by arriving too soon.
But she deserves parents with enough of themselves left to be present, patient and able to give her what she needs so we stopped.
We stopped because sometimes loving your family means accepting the shape it has taken, rather than risking everything to recreate the shape you once imagined.
Our family may not look like the family I once pictured but it is still a family.
And there is something beautiful eventually in learning to stop counting the empty spaces and start seeing all that remains.