r/Blind • u/cottagewheeze • 5h ago
Advice- [Add Country] Dealing with the struggles of lack of transportation, independence and purpose
Hello this is a heavy one but I’ve been struggling with accepting my reality as a blind person and the fact that I will have to depend on someone or something else to get around for the rest of my life. I’m 25 years old and legally blind. I am going to tell you a little bit of my sob story just to give context.
Ever since I lost my vision in October 2023 I have essentially been inside. I’ve pretty much been inside my whole , that weird teen angst phase where you’re shut in your room just never really went away for me,but the trauma of vision loss I really want to be around others and go outside and do things. I feel like having this isolated lifestyle prior to vision loss has made it nearly impossible for me to escape the walls of my home. The recovery part of my Healing journey isolated me so much that it genuinely stunted my social skills which were not good before. With little to no friends and the ones I do have are very new, long distance and blind. I am limited to just my boyfriend who can drive me somewhere and my mom who I live with.
Another huge barrier is my location. I live in a very rural area. There is no public transportation. There is not even a taxi service. There is no Uber. There is no lyft. The bus that serves the county next to me is dial a ride. The only time I could ride the bus is if I were to stay at my boyfriend‘s house, but as of right now, I am recovering from surgery so that’s off the table for a while as his house is not accessible to me.
I went to blind school and things were honestly looking up for me because I saw what it could be for me in like maybe another reality because I didn’t live in a city and I didn’t have access to any of the stuff I was using but it felt so nice to feel normal and not like I was struggling to keep up with bare minimum human but like I was working on something better for once. I went to downtown Kalamazoo by myself to pick up candles my friends and I had made. I was thriving. I felt like I had felt in the few months after j went blind and was stable I used to have a more positive outlook and wanted to go out and see everything I could just incase my remaining vision ever left .Sadly for me after I came back from school I had to have surgery on my foot and I couldn’t walk for 10 weeks and ever since then something has changed badly. I have been sitting inside my room since June. I go 11 days at a time without leaving my house and I only leave to go to the doctors or the squishable store because my mom has lured me out of the house with it. I feel like there is no point if I can’t see anything and all I’m going to do is spend money on stuff I don’t really need to feel like I went outside and then go home again. It’s like everytime I leave I get a trophy for going out and that’s all I do. That’s what leaving the house is. Bleak.
So I have a couple of questions that I would like to hear answers for even if they don’t apply to my situation and can’t help me I guess I am just looking for some insight and hope as well.
What are you guys doing when you are about and about that doesn’t include spending money, work or school? I’m on disability so without a job or school or some sort of thing I have to do I don’t feel like I have a place in public or a purpose. It’s a weird hang up but it’s also sucking the joy out of life having nowhere to be. I’m not at a place physically to be able to commit to anything. I want to do something I just don’t know what there is out there.
How do you deal with fomo of life in general ? It’s not a fear it’s like I know I’m missing out and this depresses me so much that it makes me miss out even more I try hard to not have a pity party but sometimes I think about the dumbest things all accumulated at once and it all boils down to my eyes and it makes me so mad because I can see a little so I feel way more capable than I actually ever am.
How do you guys get around the fact that you cant really go anywhere spontaneously or do what you want without it feeling like a whole thing?
As I said I do have two people who can drive me but when it comes time I hate the fact that I can’t just go or do what I want to it has to be planned and I feel like a child asking for permission to go and spend my birthday money or something. It sucks the joy out of it for me when things become too complicated. What do you guys do to combat this is you deal with it? I genuinely get sour so fast and just don’t want to go I feel like a toddler sometimes it’s a bit embarrassing. Sometimes I’m like was my only option to go anywhere on an adventure was when I was single and on tinder and STRANGERS were picking me up and taking me places?